One more day

Because 1,688 were not nearly enough

I've had a hard time thinking about how to start this message.

The day after Christmas, we ended up in the ER for Lexi. We spent 70 days battling multiple infections and starting a barrage of medications after having been drug-free for the last several years.

We re-emerged from the hospital in mid-March, and for the next 60 days or so, it was a never-ending cycle of round-the-clock medication administration and dealing with lingering infections in her body and on her skin.

At some point during those two months from mid-March to mid-May, I fully intended to come back with the learnings that I had picked up during our time in the hospital, and how they relate to Die Daily.

But we ended up in the hospital again, and after a few weeks, Lexi had passed away, finally succumbing to massive organ failure caused by numerous infections. The PICU team was amazing, and I know they did everything they could to get her back to health. Her celebration of life was beautiful, and we were blessed to have friends and family from near and far attend her services at our home church.

I wish I could say I was the strong Christian, husband, and father who was able to hold our family together during this time. But the truth is, it's been insanely difficult. I wish I could say our family has rallied around one another to support one another, to grieve together, and to be an honor for Lexi's memory. But the truth is, it's been insanely difficult.

But there is a lot I've learned over the last four and a half years that will be valuable to my readers and the community of dads trying to be fathers their special needs children deserve. And I do want to share them.

But right now, I can't bear to sit down and write as much as I would like to. But if you need help, I'm just an email or a phone call away.

The hopes and dreams I had for Lexi are on pause, and for now, Die Daily will be paused as well. As I navigate this next chapter in my journey, I am committed to returning to this and helping you avoid the many, many mistakes I've made along the way.

Until then, hug your children tight and love them with every ounce of your being.